Those with rare diseases face non coverage
A rare and painful disease, known as Nephrogenic Systemic Fibrosis, has caused Jeanie Deason legs and right arm to become frozen in a bent position. She fears that the condition will soon leave her an invalid. A Vanderbilt University Medical Center doctor says there is a therapy that may improve Deason's condition. However, TennCare, the state's insurance plan for the poor and disabled, will not pay for it because it's considered to be experimental.
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