The International Center for NFD/NSF Research (ICNFDR)
The ICNFDR is a new designation for a collaborating group of researchers based at Yale University who are involved with NSF research. The team consists of physicians and basic science researchers from several disciplines who have committed to working together in the search for the cause, treatment, and eventual eradication of NSF. The heart of the project is the NSF Registry, a direct offshoot of the original CDC investigation that began in California several years ago. Until recently, the Centers for Disease Control have not been involved in NSF investigation. Cases reported to the Food and Drug Administration are not necessarily fully reported to the ICNFDR, and vice versa. Ideally, all cases should be reported to both organizations.
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